Hemophilia is a hereditary blood disorder in which blood lacks a protein such as Factor VIII (Hemophilia A) or Factor IX (Hemophilia B.) The lack of factor prevents the blood from coagulating causing bleeds of hemorrhages. Hemophilia patients are treated intravenously with clotting concentrates either on demand due to bleeds or by regular treatments or prophylactics. In the developed countries people who suffer from hemophilia receive proper, regular care and live long fulfilling lives. By contrast, hemophilia patients in developing countries where factor is too costly live with the long-term effects of repeated hemorrhages which cause crippling, amputation and in severe cases early death.
The pressure of massive bleeding into the joints and muscles make hemophilia one of the most painful diseases. Patients cannot go to school, travel, hold a job and live isolated and dependent of hospitals. It is a disorder that affects not only the patient but also their family as they require constant attention and care in order to avoid life threatening injury.
We work with charitable organizations who donate factor concentrate which is the life saving medicine to all hemophilia patients. We have created a network of health care providers and have been able to serve many of those who suffer. With donated factor we accomplished several milestones such as the first hemophilia patient in Romania to receive a pace maker implant, the first laparoscopic surgery on a hemophilia patient, and the youngest hemophilia patient to have a sinovectomy procedure.
Copy Right 2004-2006 S.T.A.R. Children Relief
"We cannot change their past but we can change their future"
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